Lionel's 1st Race
Just Trying To Figure It Out
HERZOG HOME
Naturally Curious
Welcome to Herzog Home, my very own passion project filled with my families truths. Follow our journey as we tackle daily struggles that shape who we are and where we are headed. Some Fun, Silly and Serious insights into our home, enjoy the ride with us!
Orson
Orson is a 1 year old boy who loves to laugh and giggle, his sparkling eyes show his joy for life. He is eager to accomplish small tasks by himself, pointing to things, waving hello/goodbye, giving high fives and putting tiny pieces of food in his mouth. Unfortunately because of his disease these small things are becoming harder to achieve.
Our family is heartbroken that there is finally a treatment for this degenerative disease but is not funded by the government. At $785,000 for the first year of Spinraza we can not afford to fund this drug ourselves, nor can we afford to lose any more time since best results occur before the age of 2.
Help us prepare to secure this life-saving treatment for Orson by supporting his campaign. If you would like to donate directly, e-transfers can be sent to orson.s.herzog@gmail.com. Thank you!
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